CQL | The Council on Quality and Leadership

Glossary of Terms: P

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Partners in Policy-making
Created in Minnesota by the Governor's Council on Developmental Disabilities in 1987 as an innovative, competency-based leadership training program for adults with disabilities and parents of young children with developmental disabilities

People First Language
Preferred way to refer to specific disabilities or individuals with disabilities, typically involving a reference to the person first and the disability second

Personal Outcome Measures®
Tool developed by CQL for evaluating personal quality of life and the degree to which organizations individualize supports to facilitate outcomes

Personal Outcomes
The major expectations that people have in their lives; term coined by CQL in 1993

Personal Quality of Life
An individual’s definition of a good life

Person-centered Planning
Working with the person who is the focus of the plan to ensure that plans are based on an understanding of the person’s unique priorities and desires

An individualized approach to human services; the recognition that the measure of quality is not the delivery of a service or support, but the results that are defined by the person (preferred over person-centered) 

In addition to being person-centered in nature, services and supports are determined and controlled by the person to the degree the person chooses

Physical Disabilities
Refers to a broad range of disabilities which include orthopedic, neuromuscular, cardiovascular and pulmonary disorders

Prader-Willi Syndrome
A complex genetic disorder that typically causes low muscle tone, short stature, incomplete sexual development, cognitive disabilities, problem behaviors, and a chronic feeling of hunger that can lead to excessive eating and life-threatening obesity

Protection and Advocacy
System of state agencies established through federal legislation to protect and advocate for the rights of people with developmental disabilities

Psychiatric Disability
Specific terms should be used only in proper clinical context and should be checked carefully for medical and legal accuracy; acceptable terms are people with… psychiatric disabilities, psychiatric illnesses, emotional disorders or mental disorders