There’s No Place Like Home: A National Study on IDD Housing
In 2019, CQL | The Council on Quality and Leadership and The Arc partnered to increase knowledge of housing decision-making and identify barriers to housing decision-making and community relocation for people with intellectual and developmental disabilities (IDD). Through the project, 'There's No Place Like Home: A National Study on IDD Housing,' more than 700 people with IDD and family members of people with IDD from across the nation participated in research which explored where people with IDD live, and their experiences in those settings.
As a result of the study, CQL and The Arc produced a full technical report, fact sheets, and a short video which not only describe the study, but, more importantly, describe key takeaways to improve outcomes in housing decision-making and identify solutions for strengthening community inclusion.
- Most people with IDD and family members of people with IDD said that they had very little choice in where they lived
- Family members of people with IDD often decided where the person with IDD would live; sometimes the person with IDD was consulted, but often they were not.
- People with IDD cherished the time they had in, and with, their communities, and wanted more opportunities to integrate into their communities.
- People with IDD wanted to contribute to the choices that impact their lives, such as where they live, who they live with, and how they spend their time.
- People with IDD wanted opportunities to learn new skills, participate in tasks such as cleaning, cooking, and medication administration, and interact with friends and romantic partners.
- People with IDD wanted independence and opportunities, a setting that is physically accessible, to see their friends whenever they want, to be treated with respect, and to have well paid and qualified support staff.
- The majority of people with IDD and family members of people with IDD dreamt of people with IDD living in their own homes or apartments, as opposed to congregate care settings.
The following fact sheets offer insight into various topics that were a part of the national study, with related data, findings, and key takeaways. You can download them as a PDF through the hyperlinks below, or access Word document versions on The Arc's website.
Why People Move and How They Find Information
This factsheet details common reasons people with IDD moved and how people found information about the housing options that were available to them.
This factsheet explores people with IDD and family members’ choices about where they would live, who they would live with, and their neighborhood.
This factsheet examines what factors increase people with IDD’s satisfaction regarding where they live, as well as what they want in a dream home.
This factsheet highlights the importance of community to people with IDD and provides recommendations regarding expanding community integration.
Inside The National Housing STUDy
Through a two-part mixed method study, involving a national online survey as well as a series of in-person group activities in Illinois, the project explored where people with IDD live, and what their experiences are in those settings.
National Online Survey
The first part of this study included a national online survey of people with IDD and family members of people with IDD. The survey included both quantitative and qualitative items.
Participatory Action Research
The second part of this study included in-person nominal group technique (NGT) sessions across Illinois. NGT includes structured brainstorming like a focus group, except it is more inclusive, accessible, and collaborative.